January 4th, 2008
I am guessing you all have been wondering if we fell off the face of the earth. Well, not exactly. We've
just fallen into everyday life. Levi has been doing great. Our weekly trips to Cincinnati haven't been too
terrible. Well, except for the one we made on the 23rd, but that is a whole nother story--ice, rain,
accidents, Christmas traffic, need I say more. Levi and my 2 1/2 journey turned into a 6 hour
nightmare. We finally made it home and in one piece. I guess we should be thankful for that. That day
was just one of those days nuthin' goes right, ya' know? Anyway the scopes have looked good each
time and we have been slowly going down on the steroids. He has a scope Tuesday and if it still looks
good, then he should be taken completely off. Then he has one more scope scheduled next week.
Then he shouldn't have to have any more for a while. His labs have been set up for every other week
so he has been 2 weeks without getting stuck. YAY!
--The little rascal has been walking like you wouldn't believe. There ain't nothing stopping him
now...except for that darn backpack that he has to be attached to for feeds. We praise our 7-hour
window we have free from the cords and extra luggage of the backpack. Levi also has clinic this week
and I cross my fingers that he gets a little more time off the thing. He's been eating really good and
drinking at least 10 ounces a day. He is just amazing to watch. He has so much energy and he's always
happy. I think he's hitting the terrible 2's a little early though. He bites, pinches, pulls hair and wollers all
over anybody that is in his way... and sometimes just for the heck of it. I love it. Things were so different
a year ago. I continue to thank God every day for this miracle he's blessed us with. Levi turned 18
months on the 1st of this month. He will be 10 months post transplant on the 7th. Time flies. Only 2
more months until the big 1 year anniversary. This time is a blessing for us, but I can't help but wonder
about how the family of the donor is dealing with this holiday season without their little one to share it
with. Please keep that family in your prayers. Without them, our lives would be totally different.
--Levi did scare me a bit Thursday night. He got a low grade temp. I gave him some tylenol nad
watched him overnight. I called the coordinator Friday morning, but they said to just keep an eye on it.
The temp never got over 100.4 and that was Thursday night. He ran a slight temp Friday but it was
only around 99. He hasn't had one since so I guess, for once, that fever was just ...A Fever. It's nice to
say that. Especially since most fevers are just the beginning of a long hospital stay.
--I think that's all for now. I'll try to update more often, but school is starting next week..for me, that is.
Yep, for those of you who didn't know, I am starting back to school this semester. I couldn't get into the
program this semester, but should be able to in the fall. My major is nursing, of course. I am anxious
and excited. I worry about leaving Levi, but I look forward to having a life outside of this house for a
change. I have been a full time mom and caretaker of Levi for a year and a half. School life will
definitely be an adjustment, but I tell myself that if i can deal with everything God has thrown at me over
that year and a half, I can surely deal with college life.
--Everyone take care. I hope the Christmas holiday and the New Year went well for all. God bless you
guys. Love ya.----Laurie
I am guessing you all have been wondering if we fell off the face of the earth. Well, not exactly. We've
just fallen into everyday life. Levi has been doing great. Our weekly trips to Cincinnati haven't been too
terrible. Well, except for the one we made on the 23rd, but that is a whole nother story--ice, rain,
accidents, Christmas traffic, need I say more. Levi and my 2 1/2 journey turned into a 6 hour
nightmare. We finally made it home and in one piece. I guess we should be thankful for that. That day
was just one of those days nuthin' goes right, ya' know? Anyway the scopes have looked good each
time and we have been slowly going down on the steroids. He has a scope Tuesday and if it still looks
good, then he should be taken completely off. Then he has one more scope scheduled next week.
Then he shouldn't have to have any more for a while. His labs have been set up for every other week
so he has been 2 weeks without getting stuck. YAY!
--The little rascal has been walking like you wouldn't believe. There ain't nothing stopping him
now...except for that darn backpack that he has to be attached to for feeds. We praise our 7-hour
window we have free from the cords and extra luggage of the backpack. Levi also has clinic this week
and I cross my fingers that he gets a little more time off the thing. He's been eating really good and
drinking at least 10 ounces a day. He is just amazing to watch. He has so much energy and he's always
happy. I think he's hitting the terrible 2's a little early though. He bites, pinches, pulls hair and wollers all
over anybody that is in his way... and sometimes just for the heck of it. I love it. Things were so different
a year ago. I continue to thank God every day for this miracle he's blessed us with. Levi turned 18
months on the 1st of this month. He will be 10 months post transplant on the 7th. Time flies. Only 2
more months until the big 1 year anniversary. This time is a blessing for us, but I can't help but wonder
about how the family of the donor is dealing with this holiday season without their little one to share it
with. Please keep that family in your prayers. Without them, our lives would be totally different.
--Levi did scare me a bit Thursday night. He got a low grade temp. I gave him some tylenol nad
watched him overnight. I called the coordinator Friday morning, but they said to just keep an eye on it.
The temp never got over 100.4 and that was Thursday night. He ran a slight temp Friday but it was
only around 99. He hasn't had one since so I guess, for once, that fever was just ...A Fever. It's nice to
say that. Especially since most fevers are just the beginning of a long hospital stay.
--I think that's all for now. I'll try to update more often, but school is starting next week..for me, that is.
Yep, for those of you who didn't know, I am starting back to school this semester. I couldn't get into the
program this semester, but should be able to in the fall. My major is nursing, of course. I am anxious
and excited. I worry about leaving Levi, but I look forward to having a life outside of this house for a
change. I have been a full time mom and caretaker of Levi for a year and a half. School life will
definitely be an adjustment, but I tell myself that if i can deal with everything God has thrown at me over
that year and a half, I can surely deal with college life.
--Everyone take care. I hope the Christmas holiday and the New Year went well for all. God bless you
guys. Love ya.----Laurie
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